Minnesota Spina Bifida Association
Guiding Minnesota Families Living With Spina Bifida—Together.
Our mission is to increase awareness about spina bifida and enhance the lives of those affected.
MNSBA
Who We Are
We are the Minnesota Spina Bifida Association (MNSBA)—a 501(c)(3) nonprofit run entirely by passionate volunteers. Each of our board members has a personal family connection to spina bifida, giving us unique empathy and insight into the challenges families face.
Although nearly 2,900 Minnesotans live with spina bifida, only about 475 are active members. We’re determined to change that—because every family deserves clarity, community, and hope.
Our Mission
Our mission is to increase awareness about spina bifida and enhance the lives of those affected.
Why It Matters
Spina bifida isn’t just a diagnosis—it’s a lifelong condition that impacts the whole family. To thrive, families need more than medical care. They need a community who understands. MNSBA bridges the gap from diagnosis to a full and thriving life.
Our Promise
When you join MNSBA—whether as a member or supporter—you help build a Minnesota where families are connected, empowered, and never alone.
Empowering Families
What We Do
At the Minnesota Spina Bifida Association, we’re dedicated to building a strong, supportive community for individuals and families affected by Spina Bifida. Through inclusive events, financial support, educational resources, and meaningful connections, we create opportunities for growth, independence, and lifelong friendships. Whether it’s joining a family picnic, receiving guidance from a peer mentor, or accessing scholarships and grants, our mission is to ensure that every person feels seen, supported, and empowered.
Community Events
Free, family-focused gatherings like walks, picnics, bowling, and Twins games
Financial Support
Camperships, scholarships, and “Be Active” grants for independence and growth
Education & Guidance
Trusted resources, medical referrals, and peer mentorship
Connectivity
Statewide meetings, youth conferences, support groups, and newsletters
“I felt like we were the only two people on an island and no one else had any idea what we were dealing with. Once I found out about this group, it just was a relief.”